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Ehlers-Danlos Community Members

A supportive group of individuals with Ehlers-Danlos Syndrome sharing experiences and insights.

Ehlers-Danlos Syndrome
Chronic Illness
Support Group
Disability Awareness
Community
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People

R
@wrrrdnrrrdgrrrl.com

Author. Activist. Disabled. Queer. Defective manic pixie dream girl. Hobbies include making music and poisoning capitalist datasets.

B
@badmedicaltakes.bsky.social

Posting the worst medical takes. Have a submission? DM or @ me. #MedSky

L
@lianabrooks.bsky.social

American Author in Korea - Ehlers-Danlos Spoonie - Rroma - Rep'd by Cherry Weiner Literary - She/Her/Your Worship www.LianaBrooks.com Buy My Newest Book: https://tinyurl.com/2s3kkra4

Canadian| Disabled| Mom| Writer| Supporter of writers| Community Lead & Proofreader at Cold Open Stories| Reader and Ass't Editor @wishbonewords.bsky.social| Copyeditor| Published 20+ short stories https://linktr.ee/gen_writes https://ko-fi.com/genwrites

ED RN (not practicing) | purveyor of #liquorporn | dog lover ๐Ÿพ | small business owner | bartender ๐Ÿธ| Ehlers Danlos (hEDS) | migraineur | chronic pain |mental health matters | ๐ŸŒˆally | zebra๐Ÿฆ“ | spoonie | ๐Ÿšซ maga

E
@ehlersdanlosdaily.bsky.social

Hi, I'm Lauren. I'm a US-based artist (LaurenRubinArt.com; thank you for your support!) and a zebra (EDS, POTS, epilepsy, MCAS...should I go on?). This account is specifically for those who want to keep abreast of news and information of interest to EDS.

Neurospicy Archfey with chronic pain and fabulous hair. GM. TTRPG designer. Digital artist. "Moira" on High XP Society's AP ๐Ÿ”บ๏ธTriangle Agency [REDACTED.] Nerve probs = there will be typos. pfp @greenfinchG https://linktr.ee/pajamazonwordworks

P
@peoplepaula.bsky.social

Comedy Writer | Photographer Ehlers-Danlos Syndrome | Dx 2010 ๐Ÿฆ“ USC Cinema & Spรฉos Paris grad DC โœˆ๏ธ LA

@decriminalizearson.bsky.social

Disabled anarchist, pets cats in sleep. If I weren't homebound I'd be torching a police cruiser. EDS patient, happy to talk about if you're down with the syndrome Bi, they/them pronouns, 31 years old. Frequently NSFW, minors DNI plz

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